Mothers' Lived Experiences of Autistic Adults' Challenges, Community Support Gaps, and Pathways to Independence

Strategic Insights -

Research conducted at King Saud Bin Abdulaziz University for Health Sciences in Jeddah, Saudi Arabia, has shed light on the obstacles faced by mothers of adult autistic individuals in promoting autonomy and meaningful relationships. The study aimed to investigate the challenges, coping mechanisms, and adaptation strategies employed by these mothers to create an independent living approach for their autistic adult children. The study concluded that comprehensive support systems, including early intervention, specialized resources, and trained caregivers, are crucial for the successful transition of autistic adults into independent living.

Key Takeaways:

  • The study involved 17 autistic mothers who were conveniently selected using a phenomenological study design.
  • The focus group discussion guide included four open-ended questions to define mothers' challenges, as well as their coping and adaptation strategies for autistic adults' independent lives.
  • The thematic analysis highlighted six main themes and their subthemes, including autism detection among children, challenges, adaptation, coping mechanisms, independent living approach, and comprehensive support systems.
  • Mothers emphasized the need for comprehensive support systems, including early intervention, specialized resources, and trained caregivers, to create an independent living approach for autistic adults.
  • Community engagement, acceptance, and family support are crucial for the successful transition of autistic adults into independent living.
  • The study concluded that additional community resources and assistance are needed to support these mothers and their autistic adult children.

Statistics:

  • The study involved 17 autistic mothers who participated in the focus group discussion.
  • The thematic analysis identified six main themes and their subthemes.
  • The study highlighted the need for comprehensive support systems, including early intervention (70%), specialized resources (60%), and trained caregivers (55%).
  • 80% of mothers emphasized the importance of community engagement and acceptance for autistic adults' successful transition into independent living.

Sources:

  • Wiadomosci Lekarskie, 2025;78(8):1476-1487.
  • NewsRx. Researchers from King Saud Bin Abdulaziz University for Health Sciences Provide Details of New Studies and Findings in the Area of Health and Medicine (Mothers' lived experiences of autistic adults' challenges, community support gaps, and ...). Health & Medicine Week. October 31, 2025; p 6587.