Baylor College of Medicine
Investigators at Baylor University College of Medicine have published a new report on the psychosocial impact of osteogenesis imperfecta (OI) on families and caregivers. According to the research, OI is a rare, heritable bone disorder causing bone fragility and chronic pain due to abnormal collagen synthesis. The study aimed to
Fund raising
Martienus Thomas, a swimming coach from Llanrhystud, is embarking on a remarkable 4-day walking challenge from Aberaeron to Cardiff to raise money for the Noah's Ark Appeal. The inspiring initiative comes after one of his students, 6-year-old Lewis Danton, received life-saving care at the Noah's Ark
Fund raising
Thomas Hall, a 33-year-old man with learning disabilities, has completed a 6.5-mile walk from his home in Tottington to Peel Tower and back to raise funds for Bleakholt Animal Sanctuary's cattery renovation. Accompanied by his carer Prince Joseph, Thomas successfully completed the challenge, raising £213.50 in
City councils
The Portsmouth City Council's carers service has provided a one-stop shop for unpaid carers to receive advice, support, and a break from their caring responsibilities. A new programme of creative sessions has been introduced, allowing carers to express themselves through various artistic mediums such as painting, writing, sculpting,
County councils
Hertfordshire County Council has deliberately changed its emphasis to prioritize SEND (Special Educational Needs and Disability) and inclusion following the local elections in May. Councillor Watkin, the newly appointed executive member for education, SEND, and inclusion, emphasized the importance of addressing the complex issue of SEND, which affects not only
County councils
Unpaid carers across Leicestershire, UK, are being rewarded with free entry to two of the county's top attractions, Bosworth Battlefield Heritage Centre and 1620s House and Gardens, as part of a summer initiative. The offer, launched to coincide with Carers Week, provides free standard adult admission for 12
County councils
Shared Lives South West, a Devon-based charity, is calling on residents to open their homes and support individuals with care and support needs. The organization, which has been transforming lives for over 20 years, is marking Shared Lives Week from June 23-27. The event celebrates the growing network of carers
County councils
Carers Week 2025, with the theme 'Caring About Equality', shines a spotlight on the inequalities unpaid carers face in Warwickshire. According to estimates, there are approximately 52,725 carers in the county, providing unpaid emotional or physical support to friends, neighbors, or family members. These carers often sacrifice
City councils
Sunderland City Council is proud to support Carers Week 2025, marking the week with action, awareness, and celebration. The annual national campaign shines a spotlight on the individuals who care for others. This year's theme, "Caring About Equality," calls for greater recognition of carers' rights
City councils
The Liverpool City Council has announced the relaunch of its popular 24 Magic Months app, which provides essential tools and guidance for new parents in their first 24 months of their babies' lives. The app offers a personalized experience, with content tailored to the baby's age, and
County councils
Thousands of people in Staffordshire are providing unpaid care or support to a family member or friend, many of whom are men. Caring can be a challenging and often invisible role, with research showing that men are less likely to consider themselves carers and seek the help they need. Paul
Book publishing
Research into the lives of parent-carers of children with rare diseases, including osteogenesis imperfecta (OI), reveals a vulnerable and invisible population. A study conducted by James Cook University sought to understand the subjective experiences and perspectives of these caregivers, exploring their narratives through individual face-to-face interviews. The findings highlight the
