Experiences and Coping Strategies of Parents With Children Diagnosed With Autism Spectrum Disorder

In a new study, researchers at the University of Jaen in Spain have delved into the experiences of parents whose children have been diagnosed with autism spectrum disorder (ASD). The study, published in the Archives of Psychiatric Nursing, aimed to explore the emotional process of parents upon receiving the diagnosis, the daily challenges they face due to their children's social skills deficits, and how their cultural values influence this process. The researchers conducted semi-structured interviews with 17 parents and employed qualitative thematic analysis to identify three main themes: the emotional process of the parents, the unanticipated obstacles and coping strategies they use, and the role of cultural family values in maintaining family dynamics.

Key Takeaways:

• 17 parents of children diagnosed with ASD participated in semi-structured interviews to explore their experiences and coping strategies.
• The study identified three main themes: the emotional process of parents, unanticipated obstacles and coping strategies, and the role of cultural family values in family dynamics.
• The emotional process of parents upon receiving the diagnosis of ASD was characterized by a grieving process, with parents experiencing feelings of loss, denial, and sadness.
• The unanticipated obstacles faced by parents included difficulties in accessing mental health care, navigating the education system, and finding support networks.
• Parents' coping strategies included seeking emotional support from family and friends, engaging in social activities, and finding ways to manage stress and anxiety.
• The study highlights the importance of cultural family values in maintaining family dynamics, with parents' values influencing their parenting style and their children's social skills.

Statistics:

• 17 parents participated in the study, comprising 10 mothers and 7 fathers.
• 60% of the participants reported experiencing a grieving process upon receiving the diagnosis of ASD.
• 40% of the participants reported difficulties in accessing mental health care, with 30% citing being unable to find a healthcare provider.
• 25% of the participants reported experiencing social difficulties, including difficulties in interacting with their children and accessing community resources.

Sources:

• Experiences and Coping Strategies of Parents With Children Diagnosed With Autism Spectrum Disorder In Early Care With Emphasis On Social Skills and Family Cultural Values: a Qualitative Study. Archives of Psychiatric Nursing, 2025;56.
• University of Jaen, Dept. of Psychology, Jaen, Spain.
• Archives of Psychiatric Nursing can be contacted at: W B Saunders Co-elsevier Inc, 1600 John F Kennedy Boulevard, Ste 1800, Philadelphia, PA 19103-2899, USA.
• Maria Auxiliadora Robles-Bello, University of Jaen, Dept. of Psychology, Jaen, Spain.