Cancer Survivorship Care Lacking in Pediatric Cancer Centers
The importance of survivorship care for children who have undergone cancer treatment cannot be overstated. Despite its significance, research has shown that follow-up care remains suboptimal. A recent study published in the Journal of Cancer Survivorship has explored the factors associated with long-term survivor clinic (LTSC) nonattendance, delayed initiation, and disengagement among pediatric cancer survivors.
Key Takeaways:
- The study examined outcomes in 1138 survivorship-eligible childhood cancer survivors diagnosed between 2011 and 2019.
- The mean age at the end of treatment was 9.3 years, with 56% of participants being male and 50% identifying as Latino.
- 21% of participants never attended LTSC.
- Nonattendance was associated with older age (aOR = 1.15; 95% CI, 1.11-1.18), public (aOR = 2.37; 95% CI, 1.65-3.44), or no insurance (aOR = 2.58; 95% CI, 1.20-5.42).
- Delayed initiation was linked to higher odds of disengagement (aOR = 1.28; 95% CI, 0.85-1.92).
- Disengagement was higher among older (aOR = 1.09; 95% CI, 1.05-1.12) and publicly insured (aOR = 2.29; 95% CI, 1.55-3.42) survivors.
- The study concluded that tailored interventions supporting older and under-insured survivors, and early referral to LTSC, may improve survivor initiation and long-term engagement with survivorship care.
Statistics:
- 21% of pediatric cancer survivors never received survivorship care.
- 56% of participants were male.
- 50% of participants identified as Latino.
- The mean age at the end of treatment was 9.3 years.
- 42% of participants had leukemia.
Sources:
- Baylor College of Medicine. Baylor College of Medicine Details Findings in Cancer (Predictors of long-term follow-up clinic attendance and continued engagement among survivors of cancer in childhood and adolescence). Pediatrics Week. November 1, 2025; p 48.
- Journal of Cancer Survivorship. Predictors of long-term follow-up clinic attendance and continued engagement among survivors of cancer in childhood and adolescence. Journal of Cancer Survivorship, 2025.
- Springer. Journal of Cancer Survivorship, 2025.