Clinician-Caregiver Discrepancy in Autism Diagnosis Affects Child's Support and Development
A new study published in Autism, a journal from Sage Publications, has shed light on the relationship between clinician and caregiver reports of autism features in children. The research, conducted by researchers from Yale University, aimed to understand how discrepancies between clinician and caregiver reports relate to a child's sex at birth, age at first diagnosis, and amount of intervention received. The findings of this study have significant implications for the diagnosis and treatment of autism spectrum disorder (ASD).
Key Takeaways:
- The study included 280 children, aged 6-11 years old, with a diagnosis of autism spectrum disorder.
- Both variable-centered and person-centered approaches were used to examine relationships between standardized clinician-caregiver discrepancy and participant characteristics.
- Clinicians rated autism-related behaviors lower than caregivers for females and higher than caregivers for males.
- Lower clinician ratings of autism features, relative to caregiver ratings, were associated with older age at diagnosis and fewer hours of intervention.
- The findings suggest that clinician-caregiver discrepancies may be related to the child's sex at birth, diagnosis age, and intervention use.
- Caregiver ratings may provide a more accurate picture of a child's autism features and support needs when clinician and caregiver reports do not align.
Statistics:
- 76.8% of the 280 children in the study were male.
- 67.9% of the children were White.
- The mean age of the children was 8.5 years old (SD = 1.6).
- 40% of the children received more than 20 hours of intervention per week.
- 20% of the children were diagnosed at an age of 5 years or younger.
- The study found that 45% of the clinician-caregiver discrepancies were significant.
Sources:
- NewsRx. New Autism Findings from Yale University Discussed (Clinician-caregiver Informant Discrepancy Is Associated With Sex, Diagnosis Age, and Intervention Use Among Autistic Children). Mental Health Weekly Digest. October 28, 2024; p 352.
- McPartland, J., Azu, M. A., Wolf, J. M., Naples, A. J., Chawarska, K., Dziura, J. D., ... & Sugar, C. A. (2024). Clinician-caregiver informant discrepancy is associated with sex, diagnosis age, and intervention use among autistic children. Autism, 1-10.