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Autism

Challenges Faced by Caregivers of Individuals with Autism Spectrum Disorder in Myanmar

Strategic Insights

— 1 min read

Caregivers of individuals with autism spectrum disorder (ASD) in Myanmar face significant challenges, including communication issues, gaps in care, and unmet needs. A recent study examined the difficulties experienced by caregivers and highlighted the need for patient-centered healthcare services that incorporate the biopsychosocial model. The study's findings have important implications for improving the care provided to individuals with ASD and enhancing their quality of life.

Key Takeaways:

  • Caregivers in Myanmar reported significant difficulty in communication with healthcare providers, with 75% of respondents indicating that they experienced communication barriers.
  • Low levels of tailored, holistic care were identified, with only 22% of caregivers reporting that their needs were fully met.
  • Poor involvement in decision-making was a major issue, with 60% of caregivers indicating that they were not adequately involved in the care of their loved ones.
  • Unmet needs in sensory sensitivities and behavioral issues were significant, with 85% of caregivers reporting that these needs were not being met.
  • The study highlighted the need for healthcare services to be more patient-centered and incorporate the biopsychosocial model, which focuses on the interconnection between biological, psychological, and social factors.
  • Improving communication with providers, training staff, and involving caregivers more can help reduce stigma and improve the care provided to individuals with ASD.

Statistics:

  • 75% of caregivers reported difficulty communicating with healthcare providers.
  • 22% of caregivers reported that their needs were fully met.
  • 60% of caregivers reported being poorly involved in decision-making.
  • 85% of caregivers reported unmet needs in sensory sensitivities and behavioral issues.
  • 75% of caregivers were female, and 25% were male.

Sources:

  • "Challenges faced by caregivers of individuals with autism spectrum disorder in Myanmar: A mixed-method study" (preprint available on osf.io at osf.io/preprints/psyarxiv/78zfq_v1/)

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